remunerative appcoin more generally.
Charity Donations and the
Blockchain—Sean’s Outpost
Perhaps the world’s best-known
Bitcoin-accepting charity is Sean’s
Outpost, a homeless outreach nonprofit
organization based in Pensacola,
Florida. Capitalizing on the trend of
individuals receiving Bitcoin and not
having any local venues to spend it in or
otherwise not knowing what to do with
it, and Bitcoin startups needing to demo
how Bitcoin is sent on the Web, Sean’s
Outpost has been able to raise
significant donor contributions and
undertake projects like a nine-acre
“Satoshi Forest” sanctuary for the
homeless.137
Blockchain Genomics
The democratization and freedom-
enhancing characteristics of the
blockchain seen in many projects also
apply in the case of
which is the concept of uplifting
organizations to the blockchain (to the
cloud in a decentralized, secure way) to
escape the limitations of local
jurisdictional laws and regulation. That
there is a need for this does not
necessarily signal illegal “bad players”
with malicious intent; rather, it indicates
a lack of trust, support, relevance, and
espousal of shared values in local
jurisdictional governments. Traditional
government 1.0 is becoming outdated as
a governance model in the blockchain
era, especially as we begin to see the
possibility to move from paternalistic,
one-size-fits-all structures to a more
granular personalized form of
government. Genomics can be added to
the list of examples of uplifting
transnational organizations to the
decentralized blockchain cloud like
ICANN, WikiLeaks, Twitter, Wikipedia,
GitHub, and new business registrations
as DACs. Transnational blockchain
genomics makes sense in the context of
the right to personal information (the
right to one’s own genetic information)
being seen as a basic human right,
especially given the increasing cost
feasibility per plummeting genomic
sequencing costs.
In one view, consumer genomics can be
seen as a classic case of personal
freedom infringement. In many European
countries and the United States,
paternalistic government policy
(influenced by the centralized strength of
the medical-industry lobby) prevents
individuals from having access to their
own genetic data. Even in countries
where personal genomic information is
used in health care, there is most often
no mechanism for individuals to get
access to their own underlying data. In
the United States, prominent genomic
researchers have tried to make a public
case that the “FDA [Food and Drug
Administration] is overcautious on
consumer genomics,” 138 and established
in studies that there is no detrimental
effect to individuals having access to
their own genomic data. 139 In fact, the
opposite might be true: in the humans-as-
rational-agents model, 80 percent of
individuals learning of a potential
genetic predisposition for Alzheimer’s
disease modified their life-style
behaviors (e.g., exercise and vitamin
consumption) as a result. 140 Other news
accounts continue to chronicle how
individuals are seeking their own
genomic data and finding it useful—for
example, to learn about Alzheimer’s and
heart disease risk.141
As a result of paternalistic purview, and
no clear government policies for the
preventive medicine era, US-based
consumer genomics services have
closed (deCODEme142), directed their
services exclusively toward a physician-
permissioning model (Pathway
Genomics, Navigenics), or been forced
to greatly curtail their consumer-targeted
services (23andMe143). In response,
blockchain-based genomic services
could be an idea for providing low-cost
genomic sequencing to individuals,
making the data available via private
key.
One of the largest current
transformational challenges in public
health and medicine is moving from the
current narrowband model of “having
only been able to treat diagnosed
pathologies” to a completely new data-
rich era of preventive medicine for
which the goal is maintaining,
prolonging, and enhancing baseline
health. 144 Such a wellness era is now
beginning to be possible through the use
of personalized big data as predictive
information about potential future
conditions. Personalized genomics is a
core health data stream for preventive
medicine as well as individuals as
knowledgeable, self-interested, action-
taking agents.145
In fact, as of November 2014, a
blockchain genomics project, Genecoin,
has launched an exploratory website to
assess potential consumer interest,
positioning the service as a means of
backing up your DNA. 146
Blockchain Genomics 2.0:
Industrialized All-Human-
Scale Sequencing Solution
At one level, there could be blockchain-
enabled services where genomic data is
sequenced and made available to
individuals by private key outside the
jurisdiction of local governments.
However, at another higher level, as a
practical matter, to achieve the high-
throughput sequencing needed for all
seven billion humans, larger-scale
models are required, and blockchain
technology could be a helpful
mechanism for the realization of this
project. Individuals ordering their
genomes piecemeal through consumer